Tuesday, July 8, 2008. Kevin had an appointment with the doctor at Scottish Rites
last Thursday. I was told that Kevin has Mazabraud Syndrome which is also
monostatic fibrous dysplasia. It is a genetic disease, so he was born with it. It is
located in his pelvis and upper femur. It will not spread, but they can't treat it with
medicine. There are some options that will be available at a later time. The doctor
gave us another shoe with a higher lift. He said that Kevin will decide if the shoe with
the 4 cm lift or the 6 cm lift is better for him. The doctor wants to re-exam Kevin in a
month. If nothing has changed, the doctor will give us another pair of shoes and
send us back to Honduras. Kevin is still doing good and enjoying being here in the
States. But, I think he misses Honduras and all the kids. Please continue to keep us
in your prayers. Jeannell
Friday, June 27, 2008 - Kevin had his MRI on Tuesday, the 24th. Again, he did great.
They gave him Monsters, Inc. to watch during his MRI. He really enjoyed that. They
took several pictures then decided to use contrast. At that time, they had to put in an
IV. That didn't bother Kevin. I guess he has been thru so much, not a lot bothers him.
Now we are waiting to hear back from the doctor. I was told that it may be next
week before we get an appointment to go back to Scottish Rites. Hopefully, at that
time, we will know what options we have for Kevin's medical care.
Kevin is learning so much while he is in the States. He is trying a lot of different
foods. Things they just don't have in Honduras. And seeing so many new things.
One of his new words is WOW. He has also been doing chores around the house.
He helps with the dishes and folding clothes. He enjoys the vacuum cleaner the
most. He also thinks he should continue to get his allowance while he is here in the
States. He is a joy to be around. Jeannell
Monday, June 23, 2008 - Kevin is still doing great. He had his CT scan on Friday.
They needed to take his blood before they did the scan. They just pricked his finger.
Sometimes that is even worse. He was so good. He watched it all and never
flinched. For the CT scan, he had to lay very still for about 30 minutes. The nurse
bragged on him about how good he was. I was in the room with him. He would move
his eyes to look at me. Then grin with those big dimples, but never move his legs.
Tomorrow, we will return to Scottish Rites for his MRI. It will be longer and Kevin will
have to lay still for the entire time. They have a visor that plays movies that he will be
able to use. He is excited about that part. When the doctor gets the results from
these tests, he will contact us for another appointment. We hope that will be soon.
I want to thank everyone that has been sending cards and packages for Kevin. He is
excited every time he gets a card. He is amazed at the amount of people that care
about him. Jeannell
Monday, June 16, 2008 - I just wanted to update the web site for the ones that are
checking for regular updates. Kevin is doing very good. He still has no pain, which I
am thankful for. As he is walking, he is using his left leg more. The lift on his left
shoe is heavy, so he tires out easily. But the more he uses that leg, the stronger it
will be. One of the nurses and the radiology department at Scottish Rites has my
phone number, just in case there is a cancellation. With the scheduled
appointments that we now have, it will be after the 24th of June before we will talk to
the doctor. I wish I had more to tell you as far as Kevin's medical condition is
concerned, but right now, we are justing waiting. Until that time, I am trying to keep
Kevin busy. Margo, my daughters best friend, is teaching him daily. Even Saturday
and Sunday. I brought all of his school books with us, so that Kevin would not get
behind in his studies. He is learning alot of english too. He is very smart, so it is
easy for him to learn. Thanks again for all your prayers and concerns. Jeannell
Tuesday, June 10, 2008 - Kevin and I went to Scottish Rites Hospital for his first visit.
They took several x-rays since the only x-rays they had were from Honduras. They
have also scheduled an MRI and CT scan. These appointments are not scheduled
until June 20th and 24th. We talked with 2 different doctors who have been
reviewing his case. They want to wait until the results of the MRI and CT scan are
back to make any decisions on Kevin's treatment. At this time, the doctors will go
over the films and decide what the options will be for Kevin. Also, they added a 4 cm
lift to the sole of his shoe. The doctors want to see if this helps or hinders Kevin in
his mobility. I feel that today was a good day for Kevin.
last Thursday. I was told that Kevin has Mazabraud Syndrome which is also
monostatic fibrous dysplasia. It is a genetic disease, so he was born with it. It is
located in his pelvis and upper femur. It will not spread, but they can't treat it with
medicine. There are some options that will be available at a later time. The doctor
gave us another shoe with a higher lift. He said that Kevin will decide if the shoe with
the 4 cm lift or the 6 cm lift is better for him. The doctor wants to re-exam Kevin in a
month. If nothing has changed, the doctor will give us another pair of shoes and
send us back to Honduras. Kevin is still doing good and enjoying being here in the
States. But, I think he misses Honduras and all the kids. Please continue to keep us
in your prayers. Jeannell
Friday, June 27, 2008 - Kevin had his MRI on Tuesday, the 24th. Again, he did great.
They gave him Monsters, Inc. to watch during his MRI. He really enjoyed that. They
took several pictures then decided to use contrast. At that time, they had to put in an
IV. That didn't bother Kevin. I guess he has been thru so much, not a lot bothers him.
Now we are waiting to hear back from the doctor. I was told that it may be next
week before we get an appointment to go back to Scottish Rites. Hopefully, at that
time, we will know what options we have for Kevin's medical care.
Kevin is learning so much while he is in the States. He is trying a lot of different
foods. Things they just don't have in Honduras. And seeing so many new things.
One of his new words is WOW. He has also been doing chores around the house.
He helps with the dishes and folding clothes. He enjoys the vacuum cleaner the
most. He also thinks he should continue to get his allowance while he is here in the
States. He is a joy to be around. Jeannell
Monday, June 23, 2008 - Kevin is still doing great. He had his CT scan on Friday.
They needed to take his blood before they did the scan. They just pricked his finger.
Sometimes that is even worse. He was so good. He watched it all and never
flinched. For the CT scan, he had to lay very still for about 30 minutes. The nurse
bragged on him about how good he was. I was in the room with him. He would move
his eyes to look at me. Then grin with those big dimples, but never move his legs.
Tomorrow, we will return to Scottish Rites for his MRI. It will be longer and Kevin will
have to lay still for the entire time. They have a visor that plays movies that he will be
able to use. He is excited about that part. When the doctor gets the results from
these tests, he will contact us for another appointment. We hope that will be soon.
I want to thank everyone that has been sending cards and packages for Kevin. He is
excited every time he gets a card. He is amazed at the amount of people that care
about him. Jeannell
Monday, June 16, 2008 - I just wanted to update the web site for the ones that are
checking for regular updates. Kevin is doing very good. He still has no pain, which I
am thankful for. As he is walking, he is using his left leg more. The lift on his left
shoe is heavy, so he tires out easily. But the more he uses that leg, the stronger it
will be. One of the nurses and the radiology department at Scottish Rites has my
phone number, just in case there is a cancellation. With the scheduled
appointments that we now have, it will be after the 24th of June before we will talk to
the doctor. I wish I had more to tell you as far as Kevin's medical condition is
concerned, but right now, we are justing waiting. Until that time, I am trying to keep
Kevin busy. Margo, my daughters best friend, is teaching him daily. Even Saturday
and Sunday. I brought all of his school books with us, so that Kevin would not get
behind in his studies. He is learning alot of english too. He is very smart, so it is
easy for him to learn. Thanks again for all your prayers and concerns. Jeannell
Tuesday, June 10, 2008 - Kevin and I went to Scottish Rites Hospital for his first visit.
They took several x-rays since the only x-rays they had were from Honduras. They
have also scheduled an MRI and CT scan. These appointments are not scheduled
until June 20th and 24th. We talked with 2 different doctors who have been
reviewing his case. They want to wait until the results of the MRI and CT scan are
back to make any decisions on Kevin's treatment. At this time, the doctors will go
over the films and decide what the options will be for Kevin. Also, they added a 4 cm
lift to the sole of his shoe. The doctors want to see if this helps or hinders Kevin in
his mobility. I feel that today was a good day for Kevin.
| Family Life Missions Our Goal is to raise self-sufficient, Honduran Christian Leaders! |
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| Please Pray for Kevin !! If you are interested in sending notes or cards to Kevin, send them to this address: Kevin Munoz 2440 Sunflower Drive, Arlington, TX 76014. Please, remember to call me if you have any questions or would like more information. My number is 214-674-3647. Kevin and I appreciate all your prayers and concerns for us while we are here in the states. |